Wednesday, June 15, 2016

Domenic


Domenic

He is precious. 


A beautiful baby boy born 2016 in Eastern Europe with designer genes.  He, unlike my Leza and Nico who were also born with designer genes, is available for adoption as an infant.  Do you know what being adopted this early means?

It means he wont lay in a crib with nothing to do but rock and stare at his hands for hours and days on end. He wont go without eye contact which would contribute to gaze avoidance and sensory and/or attachment disorders.  Instead he would get the hugs, snuggles and direct eye contact every child needs in order to bond with others and learn, among other things, to trust.


It means he can get the occupational, physical and speech therapy that my Leza and Nico did not get until they were 4 and 3.  For the last 2.5 years we have been struggling to teach our children things they should have learned long before they came home, the basics like eating, drinking from a cup, walking and talking.

It means his growth wont be stunted due to poor nutrition, and lack of human contact.  Our Leza and Nico are roughly the size of 3 and 2 year olds at the ages of 6.5 and 5.5.  We have other friends with designer gene bio kids and at roughly the same age, they are so much more age/size appropriate than ours. Orphans, for various reasons, often do not grow at the same rate as their peers.  

It also means he won't have institutional autism like my almost 7 year old Leza who just this year has finally, finally started coming out of her shell.  

I know sometimes there is guilt that comes with wanting to adopt a baby when there are so many older children available.  However, having done both, I can assure you both have their rewards.  If it is in your heart to adopt an infant, please do so.  Please rescue them so that they will have a good head start in life and not grow up to be yet another older child in need of a family.  

Reeces Rainbow Link



Thursday, May 5, 2016

We Could Buy A Pool!

The other day, I was sitting in the back yard watching our eight kiddos splash and play in the two small pools we bought from our local Fred's.  The kids were having such a blast with the four girls in one pool sitting so sweetly together and the four boys in the other pool acting like they seriously needed to splash all of the water out before they were through!  

I thought to myself "Wouldn't it be great to install an in ground pool, so they could really splash and play!"  And as I sat there a few minutes longer it crossed my mind that 1. they would all need swimming lessons so that my nerves would not be shattered every time we got in the thing, and 2. that it would cost us about $25,000 to have one built with all that we would need to accommodate their special needs.  It would take us maybe a year if we were really frugal.  Yea, we could build a pool.  But then it hit me - 

That $25,000 could save the lives of two kids!

As I continued to think on that, I again realized just how much of a good time our current 8 were having.  Would they love a pool?  Sure they would.  Would they rather have another brother and sister?  Absolutely!  So could we scrimp and save and hold yard sales to buy a pool?  Yep! 

But this year I think we'll  just take swimming lessons at the Y and save two more lives instead!  

We would love it if you came along on our journey or became a part of it by contributing to our adoption fund.  The donation button is on the right of this blog, or you can click here. It will convert many currencies for those of you who do not live in the USA.  

Thank you again for your support, love and prayers!

With love,
The Robinsons


  

Wednesday, November 11, 2015

Over a year

It's been too long since I've blogged.  Goes to show you how busy we've been and, if you know me, I'm not much to talk especially when it's not "pure, lovely and of a good report."  I won't lie to you, or sugar coat it, this past year has been a tough one, but most of the kids are doing amazing! 

Leza and Nico are growing and learning by leaps and bounds.  Nico is signing up a storm and doing his best to verbalize.  He does say "Momma" quite often which just blesses my heart! Leza can eat and walk, even up stairs, like a pro!  Emily knocks the socks of anyone who encounters here with her gifted intelligence and super strength.  Misha is an amazing little trooper having just gone through major surgery on his feet, six weeks of casting and now two more (yes, the doc said two instead of four!), and he's done it (mostly) with a smile and his usual animated self!  Flora has become a precious little lady who is loving and kind and gentle and ever willing to be the big sister helping Mommy and Daddy with "the babies".  Gavin has grown to the size of a 7/8 year old.  Sometimes I have to remind myself he's just five!  Ian, what can I say, he's precious and loving and just warms my heart every time he says "Mommy, I love you."  <sigh> And then there's Lyra . . .

Lyra came home with some behaviors that broke our hearts.  When one lives in an orphanage for fifteen years, one learns things that are not appropriate amongst civilized folks.  We've had to regroup on many of the things we initially thought would be good for her and go in the complete opposite direction.  Like putting her in the room with her sisters and putting her in public school.  Both were a disaster.  She now has a room completely away from the kids, closest to our room so we can be more aware of her whereabouts.  She is also being homeschooled because her extreme attention getting behaviors and being easily distracted kept her from learning.  Since being homeschooled, which stated about two weeks ago, she is beginning to read! Something the school did not think she was ready to do. She is isolated from the triplets (Ian, Misha and Emily) during the day, left alone with her lessons which are mostly online or videoed, but monitored to keep her on task, and she's doing well.  She has learned many new, more appropriate behaviors, like how to hold an eating utensil, how to use proper table manners, how to be completely independent with her personal hygiene, how to pick out clothing that matches, and how to appropriately interact with an acquaintance or stranger.  That last one was HUGE especially since she is a pretty, friendly smiley girl.  She's in counseling to help heal her traumatic past so that it will not continue to try to repeat itself.  It's gonna take awhile, but it took awhile for all this to come about too.  She's learning what unconditional love is and how to really love in return.  She's learning that next to God, family is MOST important and one should be loyal to their family.  Keeping her home is emphasizing where that love, direction, and training should come from first.  Like I said, it's not been easy, but we are seeing progress. 

I felt like I needed to updated my kids' fans, you know who you are, and let you know how they are doing.  We really are doing fine, and with much prayer for wisdom we are making steps to do what's best for all of the kids.  We love our life and as we go through everything we have to, we grow together and become a much tighter knit family. 

Thank you all for your continued prayers!  We really appreciate them. 

Jode, Kelley and kids







Thursday, February 19, 2015

Janelle

Janelle 3


Hi all, let me tell you about a precious one known as "Janelle". 

She was born in 2007 with CP and struggles some with epilepsy. She is not able to walk on her own, but would be such a blessing to any family.  She will remain bed/chair-ridden for life if she is not adopted.

Her medical records says she has microcephaly, Spastic tetraparesis (CP), steady movement violation, Episyndrome and Strabismus. She is a tiny, frail little thing and her caregivers are very concerned about her lack of growth.

She has reddish brown hair and eyes to match with pale skin. Although weak, she is alert and watches what goes on around her.

She is in desperate need of a Mommy and Daddy who can give her love and get her the medical care she so desperately needs. 

In her country parents must be married to adopt.  She is available to older couples and those with large families. 

Janelle has a grant of over $9000 through Reece's Rainbow to help with her adoption.  If interested in finding out more about her, please contact me or Reece's Rainbow through the link above. 

If you are not contemplating adoption at this time, please share her, pray for her and donate to her grant.  We may not be able to change the world, but as advocates for God's most precious ones, we can change the world for that one!


prayer_warriors_throw_blanket.jpg





Monday, January 26, 2015

Emi and Misha - prayers please

Tomorrow morning Emi and Misha have an appointment with the ortho peds surgeon.  Misha is supposed to begin casting for his clubbed feet.  He's going to be a bit miffed since he's so active. I'm happy that nothing invasive should need to be done.  Emily is to be assessed by the surgeon to see what can be done to help her. 


Emily, who came home under the diagnosis of Arthrogryposis, actually has Sacral Agenesis. This means that part of her spine, the sacrum, is completely missing.  It causes her hip bones to rest upon one another, rather than the sacrum, and her hips are dislocated meaning the top of her legs are not in the hip sockets.  Her knees are also stiff and her feet are clubbed.  When we saw the ortho pediatrician we were not given much hope of fixing her feet, knees or hips.  He said her hips would probably just slip back out of the sockets.  If her knees were released so that they bend and then they became stiff in the bent position, she would not be able to walk.  If they do not release her knees so that they bend, they cannot cast her feet to fix the clubbing since the cast/legs have to be in the bent knee position to cast the feet correctly. 


If you're reading all this and your heart just skipped a beat, imagine how I felt while holding these two precious bundles when the doc told me all of this.  I was devastated.  My heart broke for her and what could be her future.  I cried then and many times over the few days after we got this diagnosis. But it's been a couple weeks now and each day she continues to be such a joy.  They all are.  God has blessed us with some amazing children.  Did I mention that Emily is already talking in three word sentences in English!  She's amazing.  The appointment tomorrow will be a consult.  We will then take this information to Shriners to get their opinion.  We have an appointment with them February 20th. 


I've said all that to say this, please pray for us/them through all this.  I believe God has amazing things in store of our kids, all of them, no matter how that presents itself. 


Thanks!
Kel




Sunday, January 4, 2015

This One

Many of you remember her as "Aubree" from the Reece's Rainbow website.  We fondly call her Lyra which means music, and if you know our family, you know that her name is very appropriate.




When we first began to pray about adopting Lyra, all we knew was she had a diagnosis of Arthrogryposis and "moderate mental delays"; however, a video we saw of her made us wonder if there wasn't something more going on.  She seemed to have some spasticity in her limbs and difficulty talking especially when excited.  We were also privileged to see a videoed interview of her asking about what she wanted in a family, what her likes and dislikes where, her favorite color etc.  In this interview, the interpreter, someone who knows and loves her, said she was much smarter than her speech would indicate.  Since brining her home, we agree.

Lyra has been learning very quickly and although she still has a difficult time articulating her words, she is picking up English quickly as well as American Sign Language.  The later she uses when she's unable to get a word out, like "thirsty".  Although she never had the privilege of going to school until she came home, she loves school, participates well and is picking up everything very quickly.  Unfortunately though her lack of education, special needs and that she is already 15 makes the possibility of her catching up to her peers bleak.  However! It can be done.

Lyra has until the age of 21 to graduate with a diploma from the public school system.  That gives her 6.5 years to complete 13 years of schooling.  We have decided that this year she will stay in the special needs class and we will work on language immersion and early education.  Next year it is our goal to mainstream her in a classroom of her peers.  Somehow, someway, we can do this.  Right now her education plan states she will receive a "certificate" which means she would not graduate, and then go on to classes for adults with special needs.  Jode and I feel she is able to graduate, given the chance, and go on to college.  She deserves this opportunity. 

So wherever you are around the world reading this blog, please say a pray for her, and us, and all those in the education system who will rally behind her to make this happen.  We know she has a "long row to hoe" as we say here in the South, but we serve a Mighty God for whom nothing is impossible. 

Thank you for your prayers!
Lyra's parents

Tuesday, December 9, 2014

Three Little Pumpkins - One year home

Hard to believe this month will be one year home for us with Leza, Nico and Misha.  In ways it's been a crazy year but in others really rather calm considering.  We've not made as much progress as I had hoped, but we have progressed from where they were when we came home last Dec. 

For instance, take Leza.  I had really hoped to be able to communicate with her more.  She's still basically nonverbal, and honestly she may well be for a long time.  I hope and pray not, but the reality is, you can't undo 4 years with little to no therapy over night.  That being said, she has made great strides figuratively and literally.  When she came home she could neither feed herself or walk without assistance.  She can now use a fork and spoon, she can chew her food, something she did not do when she came home, and she can walk fairly well.  We do think some of her delays are due to strabismus, or crossed eyes, and that the knee cap on her left leg will slip completely off to either side of her knee making her gate somewhat awkward.  Both her eyes and her knee are now being considered for surgery since glasses and physical therapy have remedied neither.  She just had a well baby checkup and the doctor reports that she is growing well and looks great!

Nico too has grown quite a bit since coming home.  He was 17 pounds last year and he's now 25 pounds.  He's gone from size 6-12 months to size 18-24 months.  He's leaning sign language and can sign "more please" and "thirsty".  His only consistent spoken word is "eat" and the boy does love his food.  Although Nico can feed himself and chew, he has a hard time keeping the food in his mouth when he's chewing.  We recently requested feeding therapy for him and speech for him and Leza.  We're hopeful that it will help.  Since coming home Nico too has learned to walk.  He does really well. 

Misha has grown by leaps and bounds.  For a baby who could not crawl, walk or feed himself one year ago, Misha has amazed us all.  He can now run, climb up the 5 foot ladder to our playground fort, hold his own cup and feed himself with little assistance.  His arms and hands continue to be strengthened and more mobile.  His core strength is amazing, and I do believe he could be a gymnast with the ability and agility he demonstrates.  Although his vocabulary is not as developed as I had hoped, he does understand everything we tell him.  He is currently getting PT and OT once a week, and we're hoping to add speech therapy to help him catch up developmentally.  Misha is also scheduled to go to Shriners Hospital in February.  He's going to need to have his feet, which are clubbed (yes he's running on clubbed feet!) fixed either through surgery or serial casting.  I'm hoping for the later.  His right wrist and elbow will also need to be straightened and I'm hoping that too can be done in the least invasive manner.  We shall see. 

So, we really have made great strides although they do not appear as I originally imagined.  God has a plan and He's in control.  I trust Him to put all the details in place and as you can see in the picture below, part of the plan was to bring home two more girls.  But that's anther post to be updated at a future date =)